Saturday, March 28, 2009

Tell me what you want

Now that I've posted the link to this blog around a few places, I'd like you folks reading to let me know what you hope to get out of this blog. The process of documenting this sort of experiment is new to me. What pieces of information would be the most helpful?

I'm still champing at the bit waiting for the Valtrex to arrive. I have purchased a snazzy pedometer and am planning a regular walking routine in order to 'push it' with the blisters. I will be posting about brands and styles of footwear I'm using, and posting pictures of my feet and/or hands or other areas of skin affected by the EB. I will post results of doctor visits and lab test results if they are significant.

Anything else you would like to see?

5 comments:

  1. Can't wait to hear how it goes! I know certain medications have made my blistering worse....sooooooo...worth a try to find out if this one makes it better. Thanks for posting your results. I look forward to hearing.

    R Rhys/Seattle

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  2. Hi there Rhysclan!

    I look forward to posting! Heh. I have never been excited about taking medicine before - keeping all fingers and toes crossed. :)

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  3. Good luck with your experimenting with the drug. I'll pray for your good health and will visit often to see your progress

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  4. Thank you Dan - I appreciate your prayers and well wishes. :)

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  5. aha...one more good info...hope you'll post more good info in the future


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